It has arrived. Levi just finished his sixth treatment today. I can't decide if it's a "Yay, we're half way!" or a "We still have half of the treatments left."
With each treatment, side effects and nausea seem to come on quick and last longer. And back to the warm drinks it is. There's something wrong when you have to warm up your pop like you warm up a baby bottle in a warm cup of water :( After about 6 days though, it can be room temperature without the nerves reacting in his throat. Sadly he can never get back to anything cool or cold before he has to start all over with another treatment. I feel pretty guilty drinking cold orange juice or a nice glass of ice water in front of him. What he would give to have that? And ice cream, boy does he miss that. In fact, we are already planning an ICE Party this summer when this is all over. We are going to have ice cream, popsicles, snow cones and cold drinks! Who would have thought we'd be so excited for these things!?
When we go out to restaurants, he can't drink the water out of the fountain drink machine, so he has to politely ask for some room temperature water. Several times he has gotten, "We don't have that." Really?? You don't have a kitchen sink with tap water? That's all we need. Ha. Definitely a weird request I'm sure.
When we go out to restaurants, he can't drink the water out of the fountain drink machine, so he has to politely ask for some room temperature water. Several times he has gotten, "We don't have that." Really?? You don't have a kitchen sink with tap water? That's all we need. Ha. Definitely a weird request I'm sure.
I really don't think Levi even knows what normal is anymore. Even though he gets back to "normal" about a week after treatment, he really isn't. He feels decent, yeah, but still has the coldness sensitivity and needs to wear gloves when he's outside. He also still gets tired pretty easily, headaches (he doesn't even want to take Tylenol because just thinking about ANY kind of medicine makes him sick), bloody noses and some other unpleasant unmentionables. And then there's the lovely mask and all the weird looks and comments. He wishes he had a mask on that says HEALTHY so people quit thinking he has swine flu.
Oh well, it's not that big a deal, it will just be nice when we don't have to sneak into church late, leave early and wear a mask sitting in the back. We're thinking we'll get the, "Are you new?" comments once we are finally able to come back to church every week and stay for all three hours. "Nope, we've been in the ward for 3.5 years, ha, but thanks for asking."
6 comments:
Yay you're HALF WAY! I am sure for you all it hasn't gone by fast, but it certainly seems that way for us, it seems like it was just treatment #2! Before you know it, it will be time for the ICE party. I am definitely coming to that party! I think a mask that says Healthy is a great idea, it would make me chuckle. Looking forward to seeing you all Saturday at the dinner. Have a great week!
My vote is for "Yay, half way" I can only imagine how rough the first half was, but now the end is so much closer. Our prayers are with you all always.
I also vote for the yeah, halfway there! So great talking to you yesterday. It was a nice break from worrying about work. We sure love you guys and will be the first at the ICE party - those are some of my favorite things. Keep up the fight, Levi...you're an inspiration and Kels - you keep up the fight too. You both are awesome
Congrats! I wish we could come to the spaghetti dinner and the ice party. They both sound fun and yummy! Hang in there, Levi!
Hi guys! I am happy to hear you are half way finished. That is a "Yay!" I am just sorry to hear how he is still getting so sick. Boo!
I know that Brecken has to cheer both of your spirits. Can you believe those baby blues! She is going to keep them for sure. They are big, too, like Vana's! She is gorgeous.
Y'all keep your chin up and know that prayers and love are coming your way from Sweetwater.
Love y'all! D
i wanted to come to the spaghetti dinner but am currently being treated for a month-long viral illness and have been sick at home for some of last week and all of this week...long story short, levi, i'm sure you're immunocompromised. i don't want for a second to be responsible for having this horrible bug get to you (or to brecken, for that matter - rsv is going around)!
so as much as i wanted to come and show my support, i'm thinking my support is better felt from a distance. :( if i'm wrong in my thinking, let me know...
lauren (your house-twin neighbor...ha ha)
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